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Coffee With Caregivers

Podcast Coffee With Caregivers
Jessica E Ronne
Join Jess Ronne, author, speaker, and caregiver advocate as she chats with caregivers about the joys and trials of raising a child with complex needs. Jess is a...

Episódios Disponíveis

5 de 63
  • Alice Foran: Trailblazing for her daughter and the community for 39 years.
    About Alice:"I was raised with three siblings, Pake, Reba, and Susie McEntire, two hard working parents, Clark and Jackie McEntire. 11 first cousins, a grandpap, John McEntire, two maternal Grandparents, Elvin and Reba Smith, and one extra special hired hand Louie Sandman, on a working cattle ranch in se Oklahoma in the 50's thru 1980. There wasn't much our bunch couldn't accomplish or trouble we kids couldn't get into. With horses, cattle, rattle snakes, muddy ponds, a ropin' pen, dogs, and worn out pickups what would anyone expect. I wouldn't trade my life for anyone's in the world. We were poor and didn't know it or care. I married my husband Robert in 1980 and we raised four children on our ranch in Lane, Oklahoma. Children are Vince Beck, Garett Beck Smith, Trevor Foran and Haley Foran. All my children still live in Atoka County, Oklahoma.Our daughter Haley was born in 1986 with a condition called Trisomy 18 or Edwards Syndrome. She was the baby, and her condition was unknown to us at her birth, a complete surprise. We have done some research, and she is the second oldest living person in Oklahoma with this Syndrome. Life expectancy is about 24 hours if they survive birth. She is 39 years old today. I worked for Dept of Human Services for 28 yrs and worked for DDSD Developmental Disability Services Division for 5 years learning and delivering services to individuals with disabilities. I presently contract with the State of Oklahoma as an Agency Companion. In 1986, there were no educational services for children with disabilities in Atoka County.  I helped organize the parents and school administrators to create a coop that served the children in one location. Later that disbanded as the Administrators realized they could provide those services on their own campuses. Education and pushy parents can get things done. I retired in 2002 from DHS and worked caring not only for Haley but for our parents Clark and Jackie McEntire, who are now deceased. My husband and I operate two cattle ranches, an Air B & B in Atoka, and a small mom and pop cafe in Atoka. We are very active in our church and attend as many athletic functions as we can for the grands. We have 8 grandchildren and 5 great grandchildren. I worked for 11 years with the Atoka Trail Riders Assoc. to build a new facility South of Atoka in Tushka, Oklahoma. I am very proud of that accomplishment. My dad helped create this association in the early '60s and the original facility was torn down and we relocated to a beautiful location 11 years ago. We provide equestrian events, rodeos, tractor pulls, concerts, and Bull Ridings. Lots of action. We give scholarships and help with local charities.  I am very civic, religious, politically minded and feel that all these attributes can be wrapped up in a way that we work together and get things accomplished for God's glory.  I just want to add that I never, since Haley was born, have been without help in caring for her. God gave me a blessing and helped me take care of her. I could write a book."To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to [email protected]. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.
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  • Graham Caldow: A Deep Dive Into Future Planning for Your Adult Child
    Graham Caldow is the father of daughter with additional needs and so has personal experience of the issues faced by parents and guardians and the fears they often have about their child’s future. He understands how the journey can be tough, frustrating, and lonely. He knows it’s sometimes hard to imagine a future, where they are secure, have self-dignity, have purpose to their lives and have a community around them. From his own experiences he realized his daughter needed a life plan so that there was clarity on what his daughter wanted both now and in the future. This made it easier to identify options and choose the ones that would enable her to live the life she wanted. Through having this life plan, his daughter has now finished full-time education and has moved to a paid part time job. She is actively managing her own life and finding her own community as well as building the skills she needs to control her day-to-day life. Graham wants to share the approach he’s used with his daughter to support other parents and guardians on their journeys so they can answer that question What happens when I’m no longer around? He believes the legacy we leave our children isn’t just the money we leave them, it’s the skills and self-belief that they can live the lives they want on their terms. Our greatest legacy is to help prepare them for that future. To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to [email protected]. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.
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  • Kelley Coleman: Permission to Advocate for Ourselves as Caregivers & Dealing with Shame from other Families
    Kelley Coleman is a feature film development executive turned author and advocate for parent caregivers and individuals with disabilities. Her book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports draws upon over a decade of advocacy, gained through her own journey parenting a child with multiple disabilities. Kelley lives in Los Angeles with her husband, two boys, and her son’s trusty service dog.   To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to [email protected]. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.
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  • Eileen Lamb: Severe Autism, The Price of Advocacy, and Sharing our Stories
    Eileen Lamb, author of "All Across The Spectrum" and “Be The One,” is the founder of The Autism Cafe. She’s also a photographer, podcast host and the Director of Social Media at Autism Speaks. Born in France, Eileen now lives in Austin, Texas, with her two sons, Charlie (11) and Jude (8), and their sister, Billie (1). On her blog, she shares the ups and downs of raising two children with autism, one with profound autism, while being on the autism spectrum herself. To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to [email protected]. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.
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  • Jess Ronne : A Life Update
    Tune in for a life update with Jess on new things she has been working on: book number 4, another documentary project, respite work, and more! To stay connected with Jess, head to www.jessplusthemess.com.  If you are interested in being a guest please reach out to [email protected]. We'd love to hear what you think, so please rate and review! This episode is sponsored by True North Disability Planning, to make disability planning accessible to all. To find out more, visit www.truenorthdisabilityplanning.com.
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Sobre Coffee With Caregivers

Join Jess Ronne, author, speaker, and caregiver advocate as she chats with caregivers about the joys and trials of raising a child with complex needs. Jess is also the founder & executive director of The Lucas Project, a non-profit which provides recognition, resources, & respite for special needs families & associate director of the Unseen film. She & her husband Ryan live in Michigan with their 8 children, including their disabled son Lucas. Her story of beauty from ashes is detailed in her three books. To follow the ongoing saga she can be found at www.jessplusthemess.com
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