Just returned from a rejuvenating weekend away, and I'm here to dive deep into a topic that's been on my heart—projections and assumptions in caregiving. ✨ Join me as I unravel the emotions hidden beneath my mom's words, like her oft-repeated "you're so busy," which speaks volumes about her loneliness and desire for connection. In this episode, I'll share personal insights into understanding these cues, embracing patience, and finding ways to create meaningful moments amidst the challenge of Lewy body dementia. Take a deep breath, practice some self-care, and let's navigate this journey together.
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13:28
The Importance of Having a Medical Log
Today, I’m diving deep into the importance of maintaining a detailed medication log for our loved ones. Having juggled numerous meds for my mom, I've learned the hard way about the significance of recording not just the 'what,' but the 'why' of every shift. This log has become my lifesaver in tracking changes and managing side effects. Plus, always make time for a little self-care! We're in this journey together.
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9:17
Navigating Holiday Traditions: Mindful Caregiving for Loved Ones with Dementia
In this heartwarming episode, I guide you through the holiday season, offering practical tips on balancing cherished traditions with mindful caregiving for your loved ones with dementia. Join me as we explore ways to honor and celebrate together while nurturing our own well-being, ensuring a joyful and peaceful holiday season for us all. Tune in for inspiration and support on this meaningful journey.
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13:13
Caregiving Lessons We Wish We Knew
In this heartfelt episode, I dive deep into the invaluable lessons and reflections shared by fellow caregivers on what they wish they'd known sooner. Join me as I explore the emotional nuances of caregiving, from self-care strategies to navigating the tough road of regrets and making peace with them. Let’s embrace this journey together and find joy amidst the challenges.
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20:14
Honoring Her Wishes: A Journey Through Comfort and Care in Dementia
In this heartfelt episode of Lewy Body and Mindful Caregiving, I open up about the emotional and physical challenges of navigating my mom's declining health. From the guilt of missing a call in the night to honoring her wishes for comfort care, join me as I share the tough decisions and moments of self-care that define this caregiving journey. Your support and understanding mean the world to me as I advocate for her with love and compassion.
*In this podcast, I mention My mom is in hospice care. She is not in hospice care but rather is in palliative care. Thank you for understanding.
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FIRST TIME HERE? Hey, there! I’m Krystal Jakosky - a teacher, writer, and transformational life coach based in CO. I release weekly podcasts about self-care, hard truths, journaling, meditation, and radical self-ownership. All are wholeheartedly welcome here.
LET’S CONNECT! Visit my website and visit me on Instagram, Facebook, YouTube!
Thank you so much for all the support throughout the years! If you love what we are doing here with the podcast, you can make a one time donation to support the Lewy Body and Mindfule Caregiving podcast.
Lewy Body and Mindful Caregiving is a weekly podcast hosted by yours truly, Krystal Jakosky. I’ve always been open to discussing death and the end-of-life challenges we will all face. Yet, in November of 2023, my Mom was diagnosed with Lewy Body Dementia, and suddenly everything became a LOT more real.
My aim is to bring awareness and understanding of the rollercoaster specific to Lewy Body. If you are supporting someone or know of someone who is dealing with dementia in any way, I hope this podcast can be a boost and support. Simply knowing you’re not alone can be the best lifeline.
You can listen to the Lewy Body and Mindful Caregiving podcast on any platform you use to listen, OR you can watch it on my Youtube channel. These videos will be a front-row, visual witness to the struggles, challenges, heartbreaks, and humor I’ll experience as I learn. You may think humor is an odd statement to add here. I assure you, it’s not. Finding and cherishing the moments that make us laugh is paramount to mental health, especially when you’re faced with a disease like Lewy Body.
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