Bendy Bodies with Dr. Linda Bluestein

• When Surgery Isn’t Simple: What hEDS Patients Should Know Before Going Under | Office Hours (Ep 170)

  In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her unique perspective as both a physician and a patient. With honesty and a touch of humor, she tackles everything from her least favorite diagnosis to how she manages confusing or contradictory advice. Whether you’re new to these conditions or deep in the weeds, this conversation brings clarity to complexity. Takeaways: Dr. Bluestein dives into why some patients need significantly more, or less, medication to stay under, and why it’s not your fault if things felt “off.” She explores how connective tissue disorders can affect everything from wound healing to joint positioning on the table. Learn how dysautonomia, MCAS, and EDS can complicate anesthesia depth and pain perception during and after surgery. Linda reflects on how emotional trauma and sensory overwhelm can turn recovery into a mental marathon and why that deserves more attention. From advocating for specific anesthesia plans to bringing your own blanket (really), Dr. Bluestein shares what patients can do to stay safer and more comfortable. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

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• Could Psychiatric Symptoms Be Hiding a Physical Illness? with Dr. Janet Settle (Ep 169)

  In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psychiatric illness, and why so many patients are misdiagnosed, medicated, and misunderstood. With deep expertise in trauma-informed psychiatry, Dr. Settle explains how MCAS and other overlooked conditions could be the real cause behind persistent mental health symptoms and what it takes to finally get the right diagnosis. Takeaways: Dr. Settle explains how MCAS can present as psychiatric symptoms like panic, depression, or brain fog—long before classic allergy symptoms appear. The conversation explores how common psych meds can actually exacerbate MCAS-related symptoms in some patients, leading to confusing outcomes. Learn how past trauma and immune dysregulation may work together to create a complex feedback loop—affecting mood, cognition, and inflammation. Many patients are labeled with mental illness for years before MCAS or other immune-based conditions are considered. Dr. Settle shares why this misdiagnosis is so common. Discover how identifying MCAS and understanding its psychiatric presentations can open the door to treatments that actually work—and a life patients didn’t think was possible. Find the episode transcript here. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Dr. Janet Settle? https://www.linkedin.com/in/janet-settle-md-b2666142/ www.janetsettle.com www.Gateway2Healing.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

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• From Palliative Care to Purpose: The Tilly Rose Story (Ep 168)

  In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn’t know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. Find the episode transcript here. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

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• The Diagnosis Hiding In Your Pelvis with Dr. Alexis Cutchins (Ep 167)

  In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chronic pelvic pain and how many patients are left cycling through specialists without answers. From diagnostic challenges to emerging treatments, this episode will change the way you think about pelvic pain and complex multisystem illness. Find the episode transcript here. Have a question you’d like answered in Part 2 with Dr. Cutchins? Submit here! Resources mentioned: Learn more about Sheer Health WHO Oral Rehydration Salts Study Want more Dr. Alexis Cutchins? Find @drcutchins on Instagram and YouTube Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

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• Dancing Stronger: Smarter Training for Bendy Bodies with Jennifer Milner (BEN 165)

  In this empowering episode, Dr. Linda Bluestein is joined by OG Bendy Bodies cohost, Jennifer Milner.  Jen is a ballet coach, Pilates trainer, and specialist in working with hypermobile bodies. Together they explore why traditional movement cues don’t always work for bendy bodies, how dancers and athletes can train smarter (not harder), and what it really takes to move with strength when your body doesn’t follow the rules. From injury prevention to body awareness and emotional recovery, this conversation is a must-listen for anyone living in or coaching a flexible, fragile, or frequently misunderstood body. Takeaways What if the training cues you’ve always heard—like “pull your belly button in”—are actually setting hypermobile dancers up for injury? Could “engage your glutes” or other classic instructions be doing more harm than good for bendy bodies? Discover how Jennifer helps dancers feel in control of their limbs—even when movement feels disconnected or confusing. Why do so many talented performers burn out early, and how can mindset shifts and body literacy turn that story around? Learn what it really means to train with your body instead of fighting against it—especially when your body doesn’t follow the rules. Find the episode transcript here. References: Pointe Safe by SF Performing Arts PT, Dr. Kendall Alway https://www.sfperformingartspt.com/pointe-safe Pre-pointe Assessment, Lisa Howell https://theballetblog.com/blog/pointe-articles/pre-pointe-assessment/ Pointe Assessment Journal Article https://pubmed.ncbi.nlm.nih.gov/39723557/ Want more Jessica Milner? Instagram: https://www.instagram.com/jennifer.milner/?hl=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

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