PodcastsCorridaUnstoppable Strides: Navigating Runner's Dystonia

Unstoppable Strides: Navigating Runner's Dystonia

Julie Bergfeld
Unstoppable Strides: Navigating Runner's Dystonia
Último episódio

29 episódios

  • Unstoppable Strides: Navigating Runner's Dystonia

    Researcher Ariel Beccia Shares her Dystonia Story

    29/05/2026 | 41min
    Julie talks with Ariel Beccia, a researcher with the Harvard School of Public Health, on her dystonia story and how she got from not running 10 years ago to where she is now with running and racing and workouts. 

    Please Like, Comment, Share!
    Support the show
    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
  • Unstoppable Strides: Navigating Runner's Dystonia

    Exploring Oral Therapy with Dr. Bernard Ravina of Vima Therapeutics

    20/05/2026 | 37min
    Julie sits down with Dr. Bernard Ravina, CEO and founder of Vima Therapeutics. His company is developing a drug that looks promising in helping those with dystonia. 
    Vima Therapeutic website
    Vima Therapeutics team
    Site for current Phase 2 dystonia study into first oral medication. The study is named "Stride Dystonia"
    Survey done with the Dystonia Medical Research Foundation (DMRF).  
    Support the show
    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
  • Unstoppable Strides: Navigating Runner's Dystonia

    Where we are with Dystonia Research with Neurologist Erik van Wensen

    13/05/2026 | 35min
    Neurologist Erik van Wensen shares his personal story and where we are with current understanding and research in the area of dystonia and specifically task-specific sports dystonia. 
    Mentioned in the recording:
    EMDR - Eye Movement Desensitization and Reprocessing
    CBT - Cognitive Behavioral Therapy
    Botox - Botulinum Toxin
    David Marsden
    Dystonia Medical Research 
    Dart-Player Jules van Dongen Pedals and Points fundraiser for Dystonia

    You can support our work by contributing to research and by supporting the podcast. 
    Support the show
    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
  • Unstoppable Strides: Navigating Runner's Dystonia

    Cervical Dystonia in a Runner with David Abelson

    21/04/2026 | 41min
    Julie has a conversation with Boulder, CO runner David Abelson. David has cervical dystonia and has been active in running for more than 30 years. In 2022, he developed dystonia and shares his 4 keys to his path of recovery. 
    "Don't give up"

    Mentioned in the podcast:
    Botox
    Colchicine
    Rapamycin
    Dr. Steven Frucht at NYU-Langone
    Support the show
    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
  • Unstoppable Strides: Navigating Runner's Dystonia

    EMDR Explained with Whitney Dittmar

    08/04/2026 | 46min
    Julie has a conversation with EMDR specialist, Whitney Dittmar,
    MA, LPC, EMDR Therapist for Athletes, Performance & Trauma Specialist
    Listed in the United States Olympic and Paralympic Committee Mental Health Directory (2025) for the Mental Health Directory.
    Eye Movement Desensitization and Reprocessing (EMDR) can be used with athletes and performers to enhance performance, break through mental and physical blocks. 
    EMDR is therapy that encourages the patient to focus on a traumatic memory while simultaneously experiencing bilateral stimulation (typically eye movements), which is associated with a reduction in the vividness and emotion associated with the memories. This therapy is an extensively researched, effective psychotherapy method proven to help recovery from trauma and PTSD symptoms. Research shows EMDR therapy as a helpful treatment for disorders such as anxiety, depression, OCD, chronic pain, addictions, and other distressing life experiences, and may even be more effective than Prozac in treatment. 
    Learn more about Whitney Dittmar, MA LPC
    EMDRIA to locate a therapist in your area
    Support the show
    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
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Sobre Unstoppable Strides: Navigating Runner's Dystonia
Join Julie and JoJo for information, exploration, stories of hope and real talk related to running with dystonia. Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well. Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.Give us a listen if you'd like to learn more.One small favor... if you like these podcasts and want to support the show, could you buy us a cup of coffee through a donation to support our hosting and producing fees?You can email us here if you're interested in collaborating or contributing - runnersdystonia@gmail.com
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