SARC Talk

In this episode of SARC Talk, our guest is Kathrin Schuster, Executive Director of the Sarcoma Patient Advocacy Global Network (SPAGN), to discuss the 2026 Sarcoma Awareness Month theme: "The Challenges of Sarcoma."
Together, they explore why sarcoma awareness remains critical, the obstacles patients face on the path to diagnosis, and how advocacy organizations around the world are working to improve outcomes through collaboration, education, and research.
Kathrin also shares insights from a groundbreaking global survey of more than 1,800 respondents across 49 countries, revealing common barriers to diagnosis, differences between healthcare systems, and the changes needed to help patients receive faster, more accurate diagnoses.
Most importantly, she shares a simple but powerful call to action for the sarcoma community: Be Loud!
Speak up. Share your story. Raise awareness. Advocate for earlier diagnosis and better care for everyone affected by sarcoma.

In this episode of SARC Talk, we are joined by Dr. Catherine Wilbur. Her and Dr. Okuno introduce the new SARC Talk Journal Club series. Dr. Wilbur, a sarcoma medical oncologist at Johns Hopkins University, shares her journey into sarcoma care, the mentors who shaped her career, and her vision for creating a forum for deeper discussion of emerging sarcoma research. Together, they discuss how articles are selected, opportunities for listener participation, the possibility of featuring study authors, and what listeners can expect from future Journal Club episodes.

In this episode, we’re joined by Daphne Edgren, Senior Medical Writer at Northwestern University and creator of the new podcast Rise to Face the Sun: The Patient Experience in partnership with SARC — premiering May 29th, 2026.
Daphne shares her journey into oncology research and medical writing, what inspired her to launch a podcast focused on patient experiences, and the powerful stories that have emerged through these conversations. We also explore how storytelling can shape patient care, influence research, and bring greater humanity to medicine.
This episode is a thoughtful conversation about empathy, resilience, and the importance of listening to the voices behind the diagnosis.

In this episode of SARC Talk, we are joined by Dr. Gina D’Amato, MD, Dr. Andrew Rosenberg, MD, and Dr. Andre Pinto, MD from the University of Miami for an in-depth discussion on uterine sarcoma — a rare, complex, and often misunderstood group of gynecologic cancers. Together, they explore topicsranging from diagnosis and staging to treatment controversies and rare tumor subtypes. The conversation also highlights practical insights into pathology, surgical decision-making, adjuvant therapy, and the challenges clinicians face in distinguishing benign uterine masses from aggressive disease. This episode offers valuable perspectives for patients, caregivers, advocates, and healthcare professionals alike.

Dr. Robin Jones, MD joins SARC Talk. He shares his journey in sarcoma care, from UK training to US practice and back, along with lessons from working across healthcare systems. He highlights his team’s role in major sarcoma and GIST trials, the importance of collaboration, and mentoring future leaders. The conversation also explores the future of sarcoma research, including emerging therapies and growing clinical trial opportunities in chondrosarcoma, and how global partnerships can advance care and research.