SARC Talk Episode 32 - Chondrosarcoma Foundation and Smashing Sarcoma
This episode of SARC Talk speaks with Jeff Kramer, Founder of the Chondrosarcoma Foundation, and Jamie Elliott, sarcoma survivor and advocate. Both share their personal journeys with Chondrosarcoma, a rare bone cancer, and discuss advocacy, treatment challenges, and raising awareness through efforts like Smashing Sarcoma. An inspiring conversation about strength, community, and driving progress for rare sarcomas.https://csfshayna.org/https://smashingsarcoma.org/https://usapickleball.org/
In this special episode, we sit down with Lachelle Semanko, a passionate advocate and leader at RIS (Rein In Sarcoma), a Minnesota-based nonprofit dedicated to increasing awareness, advocacy, and collaboration in the fight against sarcoma. Lachelle shares her personal journey to RIS and dives into the organization’s origin story and national growth. You'll learn how RIS is uniquely structured around three core pillars that extend beyond sarcoma subtypes, focusing instead on uniting patients, families, medical professionals, and researchers through community, education, and support. We explore the challenges of raising awareness for this rare and often overlooked cancer, and how RIS uses innovative programs and partnerships to spread the word—especially during Sarcoma Awareness Month in July. From educational outreach to community events, Lachelle walks us through the impact RIS is making, one connection at a time. We also talk fundraising, medical center collaboration, and how RIS is investing in the future of sarcoma care and research.
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SARC Talk Episode 30 - Sarcoma Centers Directory
This episode of SARC Talk is diving into the SARC SarcomaDirectory - powerful new resource for patients and families navigating sarcoma. We are joined by Dr. “Chappie” Conrad, Annie Achee, and Dr. Mitch Achee to discuss this new vital tool. Together, they share the origins and vision behind the Directory, how it was developed, why it matters, and what’snext.
In this episode of SARC Talk, we feature EricaFischer-Cartlidge, DNP, RN, AOCNS, EBP-C, Chief Clinical Officer of the Oncology Nursing Society (ONS), about the critical role nurses play in cancer care—especially in rare cancers like sarcoma. She discusses how nurse navigators, clinical innovation, and national collaboration can improve patient outcomes and experience. She also speaks on the impact of innovative nursing-led initiatives on cancer care delivery, and how ONS is shaping education and training for oncology nurses nationwide.
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SARC Talk Episode 28 - Dr. John Gross
In this episode of SARCTalk, we’re joined by Dr. John Gross,Director of Bone and Soft Tissue Pathology at Johns Hopkins. Dr. Gross shares his journey into pathology, the critical role pathologists play in sarcoma diagnosis and care, and how accurate classification drives treatment decisions. We also discuss his work with the Chondrosarcoma Foundation, the SARC Tumor Board, and ongoing efforts to improve diagnostic accuracy through research and collaboration.
SARC Talk is a podcast series featuring conversations with sarcoma investigators and patients, discussing the latest research and ways to accelerate progress towards better treatments and outcomes. Join us as we dive deep into the world of sarcoma research and learn from the experts and patients who are dedicated to making a difference. We believe that by coming together and collaborating, we can make meaningful strides in improving the lives of sarcoma patients. To find out more, visit www.sarctrials.org.
Brasil