Coffee and Turner Syndrome

Welcome back to Coffee & Turner Syndrome. We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome.

This is a solo episode with me, Brooke.

In this episode, I’m responding to a moment that caught my attention on Instagram — a mom openly sharing her daughter’s Turner syndrome diagnosis, and the backlash she received for doing so.

The mom's instagram: https://www.instagram.com/keri.rooney/

The video: https://www.instagram.com/reel/DTBFxi8D_uM/?utm_source=ig_web_button_share_sheet&igsh=MzRlODBiNWFlZA==

Watching her video stirred up a lot for me. Because truthfully? I would have loved to see someone talking about Turner syndrome when I was growing up. I would have loved to know I wasn’t the only one. I would have loved language, faces, and stories that made this diagnosis feel less isolating and less scary.

So in this episode, I share my perspective — as a fellow butterfly, as someone who grew up with Turner syndrome, navigating it quietly, often without anyone else with Turner Syndrome around, or anywhere to be seen.

☕ Join the conversation:Would it have mattered to you to see people talk openly about Turner syndrome? What do you wish had been said — or not said — when you were younger?

Other ways to connect:
☕ Coffee & Turner Syndrome Podcasthttps://open.spotify.com/show/7s0SS83kczV51hgMfr68SL

🦋 Watch Like A Butterflyhttps://www.butterflyentertainment.online/likeabutterfly

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📸 Instagram: @butterflyentertainmentgroup

If you’re listening as a parent, a woman with Turner syndrome, or someone trying to understand it better: I hope this helps. 💛

Welcome to the Coffee and Turner Syndrome Podcast!

We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we write letters to our younger selves. What would we have wanted us to know when first getting diagnosed?

Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M

Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/

Coffee and Turner Syndrome Podcast on Instagram: https://www.instagram.com/coffeeandturnersyndromepodcast/

Enjoy!

Welcome to the Coffee and Turner Syndrome Podcast!
We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we each give an update our health and share some recent experiences.

Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M

Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/

Coffee and Turner Syndrome Podcast on Instagram:  https://www.instagram.com/coffeeandturnersyndromepodcast/

Enjoy!

Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we discuss our experiences with Lymphedema, and how we deal with it.

Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M
Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/

Coffee and Turner Syndrome Podcast on Instagram:  https://www.instagram.com/coffeeandturnersyndromepodcast/
Enjoy!

Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we hear Bridget's story.

Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M
Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/

Coffee and Turner Syndrome Podcast on Instagram:  https://www.instagram.com/coffeeandturnersyndromepodcast/
Enjoy!