Coffee and Turner Syndrome

Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we chat with Savannah and hear her TS story. 
Enjoy!

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Welcome back to Coffee & Turner Syndrome! We're Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, Andrea shares her experience attending the International Turner Syndrome Conference in Australia and what she learned about healthcare, and the global Turner syndrome community.

We also discuss why medical accuracy and clear communication matter so much. A recent social media post from a Turner syndrome organization sparked an important conversation about how confusing messaging can unintentionally create misunderstandings. We share why we believe evidence-based communication is essential for patients, families, healthcare providers, and anyone learning about Turner syndrome.
Our goal isn't to criticize for the sake of criticism—it's to encourage thoughtful, accurate conversations that help our community grow stronger together.

Let us know your thoughts in the comments. How can we continue improving Turner syndrome awareness while keeping medical information clear, accurate, and helpful?
watch Like A Butterfly: www.butterflyentertainment.online/likeabutterfly

Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, we talk about the film Like A Butterfly, why we've shared our stories so publicly, and how much work for Turner Syndrome is still needed.Sharing your story does more than you think. 🦋🎟️Tickets & dates: https://www.eventbrite.com/e/like-a-butterfly-winter-screening-series-tickets-1981460753453?aff=oddtdtcreator

Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, Brooke shares how she's feeling at this point in awareness month - and how she hopes Like A Butterfly helps the Turner Syndrome Community and raises awareness.
From Brooke:
For over ten years, I’ve shared about life with Turner Syndrome — the medical anxiety, the infertility grief, the school struggles, the endless explaining, and also the strength and resilience that comes from walking this road.

In this episode of Coffee & Syndrome, I’m sharing why I created the documentary Like A Butterfly, what it means to me personally, and what I hope it brings to the Turner Syndrome community.

Turner Syndrome is life-changing — and still so unknown. My heart behind this film has always been simple: awareness and encouragement. I want people who have never heard the words “Turner Syndrome” to hear them alongside real stories. And I want the women living with it to feel seen, understood, and less alone.

I’ll also share how you can be part of helping these stories reach further.

Grab your coffee and let’s talk about storytelling, awareness, and why our voices matter. 💙🦋
💙🦋Like A Butterfly - Winter Screening Series https://www.eventbrite.com/.../like-a-butterfly-winter...

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Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.

In this episode, we’re talking about sharing a Turner syndrome diagnosis publicly — why some families choose to share, why it can feel vulnerable, and how visibility can actually be protective.

We discuss:
The emotions behind sharing online
Fear vs. lived experience
How we can support each others choices when it comes to sharing
Why we choose to share
And how to navigate sharing with confidence and care

Public sharing isn’t required. It isn’t for everyone. But it also isn’t something to be afraid, if we feel called to share and comfortable with it.

This episode is an invitation — to share however you feel comfortable.
☕ Join the conversation in the comments:
How do you feel about sharing diagnoses publicly? What has helped you feel supported?
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Other ways to connect:
🎧 Listen on Spotify:https://open.spotify.com/show/7s0SS83kczV51hgMfr68SL
🦋 Watch Like A Butterfly:https://www.butterflyentertainment.online/likeabutterfly
🎟 Memberships:https://www.butterflyentertainment.online/pricing-plans/list
🌐 https://butterflyentertainment.online
📸 Instagram: @butterflyentertainmentgroup

Subscribe for thoughtful conversations about Turner syndrome, lived experience, and building a stronger, more supportive community.